This is a blog to (hopefully) document the day and life I lead with 3 little kiddos, working mom, masters school, oh & a husband! My days are crazy and full to the limit, but this will be a great way to keep everyone up to date with what is going on with our lives! Enjoy...
Tuesday, November 17, 2009
Good and Bad News
So, we went to the ENT for Isabelle's "issues" today...I have kind of mixed emotions. So every doctor has just chalked her aspiration/penetration up to being refulx related. Well...about 4 months ago the GI doc at Children's Mercy cleared us from reflux....mind you Isabelle has not been on reflux meds since that point. So today we went to see the doc and he scoped her (Endoscopy) and said that her throat isn't normal but it isn't horrible. It was something he expected to see in a toddler who has been aspirating/penetrating all her life. He FINALLY gave her a diagnoses....Laryngomalacia....where her voice box is floppy...something we kind of knew all along but no one was willing to diagnose her with anything....BUT he put us back on Prevacid...relux medication. I don't know why I am upset about this...probably because since the beginning no one wanted to give us the time of day and that was just the excuse they gave it to get us out of their hair...so here we are finally with a diagnosis and an answer, but back to the routine of meds...we will give this next 6 weeks a shot of continuing to thicken her feedings, seeing the OT, and maybe another swallow study in 6 weeks to see if she has improved....
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